Jumping on the Gluten-free Bandwagon for our Son with Sensory Processing Disorder

I have to be honest, as the buzz increased about gluten-sensitivity, I felt pretty positive it was just the latest bandwagon to jump on. Don’t get me wrong, I understand the reality of Celiac Disease, but the “sensitivity” thing seemed like a fad to me.

Easy to say when it doesn’t involve you, right?!

Well that all changed when my second son Asher, 18 months at the time, was diagnosed with Sensory Processing Disorder. SPD is a neurological condition in which the person has difficulties organizing the sensations coming from the body and the environment. One of the first things I read about SPD recommended removing both Gluten gluten free(protein found in wheat) and Casein (protein found in dairy) from his diet. I decided I’d give it 3 weeks, and then go back to life as usual, because it surely wasn’t going to change anything.

Well I’m here to shout from the rooftops, because it’s turned out to be life-changing for us!

Making Sense of the Writing on the Wall

Before I go there, I should probably start at the beginning. For many months before Asher’s official SPD diagnosis, I knew something was not quite right. Having never heard of SPD, I couldn’t put my finger on it. I knew that life with him had been far from easy-breezy, as it was with my first son, Kyan.

I could go on about how much Asher cried and how sensitive he seemed to every little thing, but I think a lot of mom’s can relate, so I tried to believe it was just his more sensitive personality. Asher had horrible reflux that required medication, much to my holistic-minded dismay. I’d eliminated everything I knew to be possible triggers, but honestly, gluten wasn’t even on my radar at the time. I know I can’t turn back time, but I sure do wonder if I’d removed gluten if we might have found the culprit. Maybe, maybe not. But I wish I’d known to try.

From the time Asher was a newborn, it was clear to me that he didn’t like loud noises. He would get hysterical every time I used the vacuum, blender, hair dryer, etc., so I had to be conscious of the distance between us whenever I used loud appliances. He would cry when we were out in busy, loud places, and even when Kyan got too loud and rambunctious. Once he could, he would often put his hands over his ears. I felt horrible, but figured everyone was probably right….he would adapt as he got older.

So how do you know when it’s an issue that needs to be addressed, or when it’s something that “he’ll grow out of”, as I often heard?

For me it was part mother’s intuition and part detective work. I believe that many people have sensory issues to a greater or lesser degree. Kyan definitely has been on the OCD side of cleanliness and order, and well, the apple doesn’t fall far from the tree….the mommy or the daddy tree in this case! 😉 But it has always been manageable.

Around Asher’s first birthday, when he started communicating more clearly, his stress and anxiety in certain situations became increasingly clear. As time went on, things got more intense, not less.

When Asher became mobile, he suddenly had a choice. Loud noise turns on….he could now move as far away from it as possible! I would always give him enough warning, and he would literally bolt to the other side of the house. And his first 3 word sentence was “What’s that noise?”, which he asked obsessively about every little noise. I realized how easily I tune things out, and had to really work to pay attention to sounds so that I could hopefully provide an answer and avoid a meltdown.

I think the hardest part was when it became increasingly evident to me that whatever was going on was affecting him socially as well. We all want our children to feel comfortable in the world, and seeing that he didn’t was really hard on me. He would play in the same room with kids his age, in fact we’d been getting together with the same 8 kids in our playgroup since they were newborns. But if they came near him, he would scream at them. Once he learned the word “No”, he would scream that in their face if they got too close. On the playground, he’d scream at the kids coming up behind him on the slide. They were just waiting their turn, but he clearly felt they were crossing the boundary into his personal space.

It broke my heart when our playgroup reached the age where all the kids were hugging each other good-bye, and Asher couldn’t get closer than waving bye while I held him.

And then there were the tags. Or the light unexpected touch of soemething. I could see him constantly tensing up in fear of certain things touching him. And if it did touch him, or anything else happened that frustrated/ overwhelmed him, he could throw a tantrum like the best of ’em. It is so intense to have your infant scream for 30 minutes straight….multiple times a day. It was heartbreaking. And exhausting.

He also took Kyan’s mess-phobia to a whole new level! He couldn’t handle things being “out of place”, like leaves that got inside the house, or teeny-tiny pieces of fuzz that clearly shouldn’t be on the carpet. He needed his hands wiped constantly while he ate, and truly couldn’t continue unless they got cleaned. I kept hearing “just stop doing it and he’ll eventually realize it’s no big deal and he’ll eat.” Ummm, I don’t know how to explain to someone who hasn’t experienced it….and I can relate, I was one of those parents that didn’t get it when I just had Kyan. Suffice to say, that really wasn’t an option here.

And then there was the “moditating”. Moditating is a word made up by 5 year old Kyan, when he was trying to explain Asher’s behavior as “meditating” and couldn’t remember the word. And the word just stuck! 🙂

Whenever Asher is overwhelmed, over-stimulated or tired, he moditates. He rubs his lovey, Blue, usually across his lips (to the point that it regularly blisters), but often he’ll pull up his shirt or pant leg to rub Blue on his belly or legs.

He NEVER wanted his socks off, but would take them off for a few minutes here and there to rub blue on his feet. But very quickly they needed to go right back on. And then he constantly needed them “fixed”.

And when he’s moditating, he makes this moaning noise, and pretty much checks out. We can all be running around doing whatever we’re doing around him, and he will just sit there, rubbing Blue and making his moditating noise.

Then one day in music class (which was always a struggle but I kept going hoping it would get better), I had a very quick conversation that changed my life. A mom who was there for a make-up came up to me after class and said Asher reminded her of her daughter. Of course I asked in what way. We chatted for a few minutes, and then she asked if I’d heard of Sensory Processing Disorder, which at that time I hadn’t. She said I might want to look in to it, and that I should read The Out-of-Sync Child, by Carol Stock Kranowitz.

I wish I’d gotten her information so I could thank her. While it sometimes feels intrusive when other parents offer unsolicited advice or point out our children’s flaws, I am so grateful she did!

I read the book in the following 48 hours, and it became crystal clear to me that this would be the beginning of my answers. There are many variations of SPD, and of course varying degrees, and Asher’s particular challenges were with Touch & Auditory senses, and Social-Emotional sensory skills. Specifically, Sensory Modulation Disorder with Over-responsivity (really great resources available here).

The Impact of Gluten-Free, Casein Free Living

I was about to dive in to Occupational Therapy after Asher was assessed, but I decided to try this GFCF (Gluten-Free/ Casein-Free) diet for 3 weeks “just to rule it out.” Ha!

http://www.dreamstime.com/-image22808594The GFCF lifestyle has been a Godsend! And still to this day, 5 months in to this journey, I am blown away by what we’ve witnessed. Our estimation is that 75% of Asher’s symptoms were COMPLETELY GONE within 1-2 weeks of going GFCF.

Our experience has me fully on the bandwagon. 🙂

So why both Gluten and Casein?

From what I understand, not to get too scientific on you, but basically the villi of the small intestine are not functioning properly in people with gluten intolerance. In fact, they’re often completely destroyed. This is a problem because these villi are necessary for the absorption of nutrients as well as certain enzymatic activity that aids in digestion. Glutein and casein leak in to the gut, undigested, and wreak havoc. The issue seems to be different than an allergy, and more about the inability of certain people to break down these proteins. Most people find their symptoms improving within 2 weeks of going GFCF, but it can take several months to several years for the villi to return to normal, and for the body to fully be absorbing nutrients properly.

For us, I was already dairy free, so shifting Asher to my dairy-free choices was easy. I was worried he wouldn’t take to them, but he’s been happily drinking Almond Milk and eating Daiya Cheese (the BEST dairy free substitute, hands down!).

And for those of you who read my last post about my detox experience, you know that I was already wondering if the reason I was feeling so much better was simple the massive increase in greens I was consuming from green smoothies, or if it could possible be from gluten. As I said, I was sure it wasn’t the gluten, but I decided to remain gluten free with Asher. The timing of his diagnosis happening right in the midst of my detox is quite serendipitous!

I’ve since tested both of us. While my “sensitivity” is clearly nothing like Asher’s, it was still clear as day. I ate gluten one night when we were out for dinner, and the following 2 days I was d-r-a-g-g-i-n-g big time. My afternoon slump returned, but more like an all-day slump, probably because I’d had it out of my system for almost 2 months at the time, so my symptoms were exacerbated.

I was a bit fearful to test Asher, but felt I should just to know for sure. For the following 3 DAYS, he woke crying through the night, had regular diarrhea and tantrumed like crazy all day. His misery was undeniable.

I quickly realized that the easiest thing would be to have a GFCF house, rather than making separate meals. My husband, Kevin, and Kyan, can both still have gluten when we go out, but I’ve cleared it all out of our home. And I have no idea if this is related, but it’s hard to think it’s not so I thought I’d share in case it helps anyone else. Kyan will be 6 in November, and has been potty trained since right when he turned 3. However, he’s had a VERY full pull-up every morning, and we’ve wondered how we’re ever going to get past this. All of his friends seemed to be sleeping through the night, sans accidents.

Well, 4 days after Kyan went gluten-free, he had his first ever dry pull-up. And EVERY SINGLE NIGHT since then he’s been dry as well. He’s had a couple of accidents, and I can link them both to times he ate a lot of gluten outside the house. Coincidence…or not?!

As for Asher, while he definitely still struggles with some things, particularly tactile things (like the fake grass at soccer!), he is a completely different kid. I do plan to start Occupational Therapy, because clearly he still struggles and I’d love to learn the tools to best support him. But honestly, we feel like the veil was lifted and we are seeing our sweet Asher for the first time! When I turn on the hair dryer, he now says “mama that’s loud.” I ask him if he wants to go to the playroom, and he says no. He definitely doesn’t want to be right next to me, but he sits on the bed and watches attentively.

And the very best news….he now LOVES to hug (and even kiss!) his friends. It absolutely melts my heart. 🙂

He still moditates quite a lot, but I take that as his internal guidance system telling him that he needs to re-charge. We all honor it, and when he’s finished, he’s ready to be present and engaged. It’s pretty amazing.

Because Asher’s results with removing gluten were so dramatic, I do wonder if he is actually Celiac. But to get the test done, he would need to be “on gluten” for 2 months. Yikes! After 1 meal on gluten, I saw more than I ever need to see again! I don’t need an official diagnosis to know beyond a shadow of a doubt that gluten and my son are like oil and water. I wouldn’t be surprised if chooses to try it sometime down the road in his desire to be “more like his friends”. We’ll cross that bridge when the time comes.

Raising Awareness of Sensory Processing Disorder

At the end of the day, all that really matters as a mama is the health and happiness of our children. I hope this post brings some awareness to an issue that I think should be at the forefront and is unfortunately barely acknowledged or even understood in the medical community….and that is the power of diet in reducing/ resolving not just SPD, but issues such as ADHD, Austism, depression, anxiety, bipolar, etc. The first answer should not be to try drugs that mask the symptoms, but in getting to the root cause and eliminating it. It may not be the easy route, but it’s the route that can heal our children, our families and I truly believe our world.

Unfortunately, SPD is still a controversial diagnosis. It is being studied more and more, and I actually just read a promising post in Huffington Post’s Healthy Living section citing the first study to show abnormalities in a different region of the brain specific to sensory processing, which would mean that SPD is in fact neurologically distinct. But in the meantime, if you go to a doctor to discuss your child’s irritability, lack of focus, intense fears and sensitivities, they tend to want to treat the symptoms individually, and often with medication! It infuriates me. So until the medical community wakes up to the power of real food, we, the passionate mamas, have to work together as advocates for our children.

So how about you? Have you had a life-changing experience from going gluten-free? Do you have a child with a neurological condition that has been helped with dietary changes? I’d love for you to share any stories or thoughts you have in the comments!

I also want to be sure to say, that while eliminating gluten and casein have been life-changing for us, I know that this is not a one-size-fits-all solution. That being said, good, clean nutrition will certainly only help to heal our children so they can thrive to their full potential.

I will be writing more about this and the things we learn and discover along the journey. Another great book I highly recommend is Cure Your Child With Food: The Hidden Connection Between Nutrition and Childhood Ailments by Kelly Dorfman.

I look forward to sharing my GFCF recipes with you, because I am turning in to quite the little chef as a result of this!

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34 Responses to “Jumping on the Gluten-free Bandwagon for our Son with Sensory Processing Disorder”

  1. Really loved this post and story about going gluten free! Very inspiring to me in many ways. As far as I know my kids do not have any of these symptoms to need to go gluten free but it reminds me to stay in tune. I love how you are so in tune with your kids. It inspires me to try to do the same instead of being so demanding that they just fix what frustrations and issues they have. Also reminds me how powerful and important a real food diet is! Thanks for sharing your story!


    bethallen Reply:

    Thanks so much, Lauren! Even without having this particular experience with your kids, you are so right, there is a universal theme about helping our children heal and thrive by tuning in. I can relate to getting frustrating and sometimes having unrealistic expectations, but I always try to put myself in their shoes, and imagine how it would feel to hear whatever I’m saying. When I operate from that place, I can see how loved and supported my boys feel! A lifelong practice, indeed. 🙂 Thanks for stopping by, and I’m glad to hear you were inspired!


  2. Beth,
    Thank you for such a wonderful post. It made me realize that our diet may be affecting our son in a negative way. Your post literally made me start researching myself and I’m going to try the GF/CF diet as well. I am so excited and can’t wait to share with you his progress!


    bethallen Reply:

    You’re welcome, Kara. I look forward to hearing about your progress with your son, and really hope that it helps! Stop back and let us know in a month or so. As I said, it’s not always easy, especially in the beginning, but if it helps, it is obviously worth it!


  3. A mother’s intuition is such a powerful thing. I’m so glad you are finding success with Asher on this diet, and that you feel that you can now see Asher’s full personality. It’s such a difficult diet for toddlers, but even more so as they grow up and are around friends. My son is also gluten free, and I’m glad to hear stories from other families who are dealing with the same issues. With more and more people discovering the effect gluten can have on the brain, I hope it becomes easier and more culturally acceptable to eat gluten free.


    bethallen Reply:

    Thanks so much, Ashley. Yes, I know there will come a day where he says “i want that _____ (pizza, birthday cake, etc.)” and I’ll feel he’s old enough to try it and see for himself. I’ll prepare him that it will make him feel bad, but I know that doesn’t always register with a 5/6 year old! I’ll hold off as long as possible, but I know that day will likely come. I have heard that unlike other childhood food allergies, gluten is not something that anyone is likely to grow out of. I am still learning a lot, but 5 months in, it really has gotten SO much easier. And yes, it is becoming more culturally acceptable. Slowly but surely. I have learned a lot about gluten’s effect on the body, but am just beginning to learn about the effects on the brain. Really heartbreaking what’s happened to our food industry. Yuck. Thanks for sharing your thoughts!


  4. It’s really a powerful thing that you write.It reminds me how powerful and important a real food diet is! Thanks for sharing your story! Thank you for the post.


    bethallen Reply:

    Thank you very much. Real food is indeed powerful…it never ceases to amaze me how complex we make things when the answer is often the most simplest and basic idea! Thanks for visiting.


  5. I love what you wrote, so THANK YOU! I have been debating removing gluten from our diet to test my daughter’s reactions and temperament. She also has SPD. Here is my concern: she is orally defensive so a HUGE part of her struggles are eating related. She eats just about nothing and I’m concerned that if I remove gluten, there will be nothing left that she will consume. Any suggestions?


    bethallen Reply:

    You are so welcome, Courtney! This is why I shared my story. I would definitely suggest trying it for 30 days at least. We saw a dramatic difference very quickly, but I have heard others say it was a slower transition over a month or 2. And continuing for much longer than that. I’m curious, what types of food DOES your daughter eat? I can’t say much without know that, but if it’s bread-y products, there are GF options (though pricey), and of course baking yourself, which we found to be the best option. And I don’t know if this is related, but Asher is way more willing to try new things since we removed the gluten.

    Knowing what gluten does to people who have intolerances provides a compelling reason to try it. If you can begin her journey of healing her gut, regardless of what she’s eating, wouldn’t it be worth it if her symptoms lessened, or possibly got much better? I wish you the best of luck, and if you’d like to chat more, you can send a message on my facebook page. It’s always great to connect with others who can relate.


  6. My daughter is 2 and not diagnosed with SPD YET, but we are seeing more seeking in the vestibular areas and oral defensiveness. She also had major gross motor delays (didn’t walk until 21 months) and fine motor (isn’t chewing still). Also, we have thrown around the idea of dyspraxia and apraxia since she isn’t talking yet. While waiting for answers , I think I would like to give Gluten Free and Dairy Free a try. My questions follows the above comment. With her oral defensiveness, she only eats the following foods:

    Apple sauce, pudding, toast, Mac and cheese, spaghetti, mashed potatoes, avacado, and milk.

    Are there reasonable GFDF options for those foods?

    Thanks for your post! I’m happy for the success you have seen!


    bethallen Reply:

    Hi Brittaney, I am so sorry your daughter is struggling, but sounds like she has a great mama working to find the best solutions so she can thrive. 🙂 As for GFCF options to what she’s willing to eat…YES! GF breads are getting better…we like Udi’s Millet Chia and Omega Flax, and also Canyon Bakehouse. There are many GF pastas available, my favorite brand is Tinkyada. They make all the different shapes, and we feel they have the best texture/ taste and hold up the best. The only Casein-free cheese brand is called Daiya. They sell it in blocks (although the texture is soft) and also shredded. You could melt it with noodles for mac n cheese, or you could google vegan cheese sauce and she if she likes that. We make one with cashews, olive oil, nutritional yeast, ACV, GF tamari and then whatever spices you’d like (garlic, onion, paprika). Or sometimes instead of cashews I use either almond or coconut milk, and tahini as the base and the nutritional yeast and spices.

    What I’ve discovered is, pretty much anything you’re looking to turn GF or CF, you can google it and find tons of options! Seeing that your daughter likes avocado and pudding, you should check out my post – Chocolate Chia Avocado Pudding. My kids LOVE it! Lastly I’ll say, while there are lots of GF goods out there now, I have increasingly shifted to making everything from scratch. GF does NOT mean healthy…processed still means processed and there is often lots of sugar added to GF foods. Reading labels is always important. I should really write a post about all of this! 😉 Good luck with this transition, Brittaney, and feel free to contact me here on my blog or on FB if I can help in any way!


    Brittaney Reply:

    Thanks so much! I appreciate your help!!! I think that because her diet is limited it might be an advantage because I can just figure out those few things and then work our way up from there 🙂 I will check out the recipie for sure!


  7. Your story give away a light of hope. Thank you.


    bethallen Reply:

    You’re welcome, I’m happy to hear that!


  8. I had no idea! I have a friend who has a 7 yo with SPD similar to Asher, she introduced me to SPD. I have suspected for quite some time that Annika is on the hypo-side for several months now. I have a feeling that a percentage of it come from a combination of bad hearing (ear tubes since 1yo) and bad vision (I finally figured that out at 3yo)- so she extremely craves the sensory processing that she WAS getting sufficiently. At almost 4 years old, she still stuffs her mouth full of things that a toddler would, llicks all kinds of things at home and in public, watches TV and plays on her ipad while hanging upside down off the couch, loves to jump (in fact, she would rather jump to get somewhere than walk, or even run). So far I’m thankful that the hypo-ness hasn’t really affected her socially- other than just being a bit “weird”- but I do worry that the “excitement” that she craves could magnify into more as she gets older.


    bethallen Reply:

    Wow Staci, I had no idea either! I guess it’s been a while since we caught up! 😉 Sounds like Annika is definitely a sensory craver (the opposite of Asher). Have you read the Out of Sync Child? I highly recommend it. It really made things make so much sense, as well as giving ideas on how to support him. Glad to hear it’s not affecting her socially. We’ll have to talk more!


  9. Stumbled across this post on Pinterest today while looking for gluten/casein free recipes for my 10 year old daughter with SPD. We made the switch 8 days ago. My daughter went from 3-5 meltdowns each day to 0 since Day 2 of the diet, plus she was able to sit at dinner with me for a full 15 minutes before retreating on Day 6. Life changing! We are going to add essential oils to address some of the anxiety. It is my hope and prayer that she can eventually be weaned off her medication. I’m so glad you figured out the deal early on in Asher’s life. My little has been suffering for years because no one would listen to me.


    bethallen Reply:

    Danielle, your message has me in tears for so many reasons! I can relate to the life-changing difference you’ve experienced by removing gluten and casein, and can only imagine how that must feel after 10 years! I am thrilled for you, and your daughter. It isn’t the easiest journey in the beginning, but it SO worth it as you see their tantrums dissipate and their true self emerge and shine more and more. I will say this ~ when we go out to dinner, even ordering “gluten-free”, we almost always notice his meltdowns increase for a few days after. We’ve discovered certain restaurants we feels safe at, and frequent those more often. Always ask questions! I’m also happy to hear you’re incorporating oils…I’m a huge fan of oils and they’ve made such a difference in my life. Reach out to me on facebook if you ever need a sounding board or want to discuss ideas or just be HEARD! I’m listening…and I’m so sorry nobody else was. I would strongly suggest learning about healing her gut, as I’m sure it’s been put through the wringer over the years. Best of luck to you on this journey. xx


    Mel Reply:

    I’m partial to medical science and not one to jump onto fad diets…but we were at the end of the line with our LO last month. Meltdowns every day. She has SPD, as well as hypotonia. She’s NOT autistic – maybe the opposite as she is overly emotional and anxious about everything. We tried a GF diet as a last resort before meds (and our house is already very dairy light thanks to a severe dairy allergy in our other LO). It was like night and day. I cannot describe the change. It was like getting our daughter back and present full-time instead of the little pieces we got normally. We did 2 week GF and then two weeks on a normal diet with gluten to see if there was a difference. Holy smokes. Meltdowns every day. Went back on GF yesterday and I almost cried this morning. My daughter is back, calmer and in control of herself. Present and able to talk with us without meltdowns or being overly distracted. Yes, it’s hard to go GF, but for us, it’s been like a miracle. I’m completely surprised there haven’t been scientific studies about this EASY, non-medicinal treatment for SPD.


    bethallen Reply:

    Mel! Your comment brought tears to my eyes. It puts me right back there to when we experienced the same with our son. Your daughter sounds just like our little guy. I wasn’t buying into it either, but when the difference we saw was as dramatic as it was, there was no arguing it! We are now 2 years into this, and I can’t imagine what we would have endured if we hadn’t figured this out. Whenever he gets gluten exposure (at restaurants it’s common, even ordering GF), we always are met with a few days of insane tantrums. The reason there aren’t big studies is all politics. Way too much money on the line. It’s the same reason there’s not a cure for cancer yet. Instead of working for the greater good of the people, everyone has their own agenda’s that they will fight tooth and nail to protect. It’s a mess, and so frustrating. Anyhow, I’m THRILLED for you! Thank you for sharing your story.

  10. My little guy, who just turned 6, was diagnosed with dairy and gluten sensitivity..

    While he never had SPD, he would develop painful eczema on his legs, have terrible tantrums, and have asthma-like symptoms prior eliminating gluten and dairy from his diet.

    He is a different child now and like your son, he stopped peeing in bed in the middle of night after the switch. I too thought it was a coincidence, but I tested it and each time I gave him a bit of food with gluten, he would pee in bed that night.

    I am now making all our food gluten- and dairy-free. I wrote about our journey on my blog where I share yummy GF and DF recipes.

    I did not believe in the gluten and diary-free diet either. However, I learned about it while I was studying nutrition and the more I read about it, the more I became convinced in its usefulness.

    We are now more than 3 years into it and we would never go back.
    Alina´s last blog post ..5-Day Sample Meal Plan for YOU and My Favourite Healthy Tip


    bethallen Reply:

    Hi Alina, sounds like we have had a very similar experience! Wild about the bedwetting, and upon google searches, we’re not alone in that.

    We are now 2 1/2 years in, and are considering testing him on dairy to see how he reacts. I know a lot of kids do grow out of sensistivies once removed for at least 2 years, and while we will remain dairy free at home, it sure would be nice if he could join in his friends for ice cream once in a while! We’ll see. Gluten we’ve “accidentally” tested enough times to know that it makes his tantrums out of control. Dairy was a different reaction, more intestinal, so we’ll see how that goes. I do know that my older son can tolerate dairy all year except Sept-Feb, when his allergies are bad here in TX. I’ll report back on what I discover with my little guy!

    Thanks for visiting, and look forward to checking out your site as well! 🙂


  11. This was such a helpful resource for me. My son is 12 years old. Has had medical issues all of his life including epilepsy and SPD. As he has gotten older it has gotten worse. He is going to middle school this year and I fear the worst for him. His anxiety levels are through the roof and more recently he barely eats as things are to hard, cold, soft etc.I feel any happiness in him diminishing. I started eating gluten free a year ago and feel so much better. I have 4 picky boys and a husband so the thought of trying to get them on board felt non existent. After, reading your blog I will be starting our new way of life immediately. Hope this work!


    bethallen Reply:

    Kara, I cannot begin to imagine what you are experiencing, but my heart goes out to you. I’m happy you found your way here and hope that dietary changes can bring about some increased happiness and decreased anxiety. Food is incredibly powerful. I can directly correlate my own anxiety with the foods I’ve been eating. It sounds like you have an additional issue with your son having taste issues, which I haven’t experienced but have read quite a bit about. Focus on finding a few real foods he will eat and start there. What tastes/ textures does he like? Once you know those, google away and you can find clean versions of things he loves. It takes a bit of work, but if it helps, you’d do anything, right? Let me know if I can assist in any way. Best of luck to you and your son. xx


  12. Thank you for posting your story. I stumbled on your
    Post after doing research on GF/Cf diet for children with SPD. My
    son is a seeker and i dabbled
    In a GF diet last summer. I noticed a small difference
    For a day or two but that was it. Since then I realized that red dye also affects him which is why we
    Probably didn’t see better results going gluten fee.

    My question to you is …. In your
    Opinion could we be GF/CF at home only and still see some
    Benefits? Honestly I would love to get his ‘buy in’ before announcing his new diet😄. I hope he notices a
    Difference himself so that he will be self disciplined if we need to have a full on GF/CF free diet. Thank you!


    bethallen Reply:

    Hi Jo, yes, my son is also sensitive to food coloring so I understand. How long did you try going GF with your son? The entire summer? I do know many people who report they just noticed very small changes, but suddenly 6 months down the road their child was completely different. Did you also remove casein? The two proteins are so similar, that many who react to one react to both. As for being gfcf at home and not when you go out, that’s a tough one to answer. For my son, no way. His reactions are very strong and very clear. Also, many kids can reverse their food intolerances if they keep them out completely for 2 or more years. So that’s incentive to not just dabble. We are now at 3 years gfcf, and tested both recently. We just gave our son a small amount of gluten, and no reaction! We are waiting until summer to do a proper test though so we don’t disrupt school. He had a bad reaction to dairy, so that one is still off the table for us. If the child is truly intolerant, every time you let them have it, you are hindering the healing of their gut. And we want a healed and happy gut. Let me know if I can help in any way!


  13. Thank you for writing. Just started gluten free with my spd son. Would like to go casein free (I am dairy free), however he is such a picky eater already, I think he would have a very difficult time with a different milk and cheese. Do you think there is a benefit to still go glutein free and not casein free? Or do you think both gluten and casein need to be eliminated? Obviously, each case will be different with each child, but I’m wondering if you knew of any research that related to both as opposed to if only gluten might help. Thanks for any input!


    bethallen Reply:

    Hi Jessica, yes it is a very individual basis. I know many kids who can have casein but not gluten, and many who can’t tolerate either. The proteins are very similar in structure, so it’s worth trying. How old is your son? You could always start with 1/4 almond milk and 3/4 milk he’s used to, and the next week 1/2 and 1/2 and so on. But first I’d just try it and see what he thinks! My kids had no issue, not even my older son who didnt’ even need to switch. I will add, that dairy is very mucous forming. So I’m actually not a big fan of too much dairy consumption anyhow, especially during the sick months and if the child has allergies. No need to add more mucous! As for actual research, it’s limited. The dairy industry is very powerful, so it’s not very easy to get studies out there that might do anything to discredit the dairy industry. Anecdotal stories are worth so much more to me…mother to mother…that’s where I believe the truth lies. Let me know if I can help in any way!


  14. Hi, my sister shared this article with me, and it was so relatable that I literally cried while I was reading it. I have an adopted son with SPD, and I am now interested in trying this diet with him; he has severe issues with food, never getting satisfied, and throwing tantrums throughout the day because of it. I have another child with Celiac Disease. My two daughters and I all have multiple food sensitivities, including gluten and dairy, so half of my household is already on a GF/DF diet. Thank you for all of the information, and I am glad that you have seen such positive results through diet.


    bethallen Reply:

    Hi Leann, I’ve been away from my blog for awhile dealing with some family health issues. I hope that dietary changes have been helpful with your son’s SPD. Sounds like you are indeed the perfect family for him! We also have an adopted daughter who just turned 2. 🙂 Anyhow, almost a year later, I just wanted to send some love your way and apologize for my lapse in communication.



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